A global community of families, scientists and doctors coming together to defeat rhabdomyosarcoma.

The UK Arcs

The Arcs is a place where a family and their supporters/community can honour a child or young person’s experience with rhabdomyosarcoma, fundraise, advocate and demonstrate their impact. Collectively, it allows families to come together – funds can be pooled towards the most meaningful research and voices can combine to convey our message.

Oliver Hurd's Arc
Ethan's Arc
Beanie's Arc
Sophie's Arc
Gaspard's Arc
Mollie's Arc
Jessica's Arc
Freddie's Arc

The USA Arcs

The Arcs is a place where a family and their supporters/community can honour a child or young person’s experience with rhabdomyosarcoma, fundraise, advocate and demonstrate their impact. Collectively, it allows families to come together – funds can be pooled towards the most meaningful research and voices can combine to convey our message.

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A children's cancer charity dedicated to funding research into finding a cure and less harsh treatments for Rhabdomyosarcoma.

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Alice’s Arc works with a network of expert scientists and clinicians who focus on rhabdomyosarcoma. They work in major research institutions and leading paediatric cancer hospitals. They include, the Institute of Cancer Research (ICR) in collaboration with Great Ormond Street Hospital (GOSH) and the Royal Marsden Hospital (RMH). The ICR, together with its clinical partner, The Royal Marsden NHS Foundation Trust, forms the largest comprehensive cancer centre in Europe. GOSH is the largest paediatric cancer centre in Europe. Also, The University of BirminghamWellcome Sanger Institute and UCL Great Ormond Street Institute of Child Health.

46

New cases every day

160,000 children diagnosed annually across the globe with cancer

550

Children die each year

Childhood cancer is the number 1 killer of chidren under 14 years old

4

New drugs in 20 years

Only 4 new drugs have been
in approved in the last 20 years to treat
childhood cancers

8%

Survival rate on relapse

A relapse from rhabdomyosarcoma
generally has a very poor outcome (8
20% survival) as it’s not responsive to
current treatment.

Our Mission

We have already raised £3,500,000 and now aim to reach £5,000,000 to pay for research to find a cure and better treatments for rhabdomyosarcoma.
Raised £3,500,000
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Our Community

Keep up to date with all our latest news and developments here.

Read all about what happened from 1st October 2022 to 30th September 2023 in our Annual Report.
Family Research Day at the Sanger Institute
This Request for Applications (RFA) in conjunction with SBF EPICC will lead to a $750K RMS research grant.
This incredible football fundraiser involving Neive’s community and professional footballers raised £5K.
A team of 105 runners comprising scientists, doctors, surgeons, nurses, pharmacists, families, friends, parents all ran together.
This incredible community event marked Mollie’s five year anniversary of her diagnosis with rhabdomyosarcoma.
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