Elliott’s Arc launches and presents £10K cheque raised by his community

On the 9th February 2023, we welcomed Elliott’s Arc to our ever-growing collection of Arcs across England and Northern Ireland.

Elliott was diagnosed in October 2021 with stage 4 embryonal rhabdomyosarcoma, with the primary tumour in his jaw and extending back towards the brain. Sadly, Elliott relapsed in August 2022 and passed away on the 1st December 2022, aged 5. Please read all about his story via the link to his webpage below.

Elliott’s experience with rhabdomyosarcoma has triggered Elliott’s parent’s to do something constructive in Elliott’s name to make progress for children diagnosed in the future. They had already raised funds for Elliott’s magical wish list, when they knew that he would not be cured. And so, Elliott’s Arc was born, with a £10K starting donation and lots of fundraiser’s in the pipeline, designed in true Elliott style.

Elliott’s school hosted a fitting memorial assembly today where class members and teachers shared their feelings and memories all about Elliott. The school created a beautiful photo collage and sang a favourite hymn of Elliott’s ‘This little light of mine’. As part of this, Elliott’s Arc was formally launched and the £10K cheque presented to the charity. To coincide with the launch, the Henley Standard published articles incorporating extensive coverage about Elliott’s journey, the launch of Elliott’s Arc and the mission of the charity.

Thank you so much to everyone involved. What a launch, what a day! But, it shouldn’t be this way. Elliott, thank you for becoming another inspiration of our daily work. You are in our hearts. Together we are stronger. Together we will enable change. Your parents, family, friends and community are right behind you. #thearcs #rhabdomyosarcoma #childhoodcancerresearch

News

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Read all about what happened from 1st October 2022 to 30th September 2023 in our Annual Report.
Family Research Day at the Sanger Institute
This Request for Applications (RFA) in conjunction with SBF EPICC will lead to a $750K RMS research grant.